Resources

Coping with Loss and Change when you are Neurodivergent

Brian Lux

Director of Camp Sequoia

There is comfort in the known. The organization and established routine can be a self-soothing mechanism. Linus’ old security blanket or the eyes on a screen watching the same YouTube videos over and over or that one King of the Hill or Simpsons episode that strikes the correct chord are familiar and safe.  It is the reason why we cocoon ourselves in the comfort of classic movies or familiar stories– we like how it makes us feel. Stepping outside of the known can be a scary endeavor for anyone and this is especially true for the neurodivergent mind. Just as it is very difficult to assess someone else’s pain (physical or psychological), it is exceedingly tough to quantify the grief or sense of loss when a key part of our routine is no longer an option. 

My first resident camp experience was in the Blue Ridge Mountains on a beautiful tract of land that spanned thousands of acres. We stayed in old green canvas tents that evoke a certain smell that still lingers when I think about it. There was a climb up from the lake on a ramshackle path with partially askew rocks to keep the trail from washing out. The trading post boasted a soda fountain where the ice was at a premium and the soda always came out with just a little too much syrup and not quite enough carbonation. We loved it. It was hard work, the food was mediocre, but the team we had and the positive impacts we had galvanized my belief that camp truly was a transformative experience that I wanted to be a part of my life. Sadly, like many summer programs, this camp closed during the COVID pandemic and never re-opened.  The lake is there, the hill is there but there are no kids running to the trading post and no staff making memories in the same way anymore. 

Even though it had been years since I was physically there, after all Camp Sequoia is my home now, recognizing that what was once a vibrant dynamic camp now sits largely empty makes me grieve in ways that are very difficult to articulate. Similarly, change can feel overwhelming for kids who are neurodivergent. Whether their favorite camp ends, a sports team moves away, or a treat they love disappears from the store, these changes can feel like a big loss.

Children with ADHD, autism, or other developmental differences often rely on routines and familiar things to feel safe. So, when something changes, it can feel confusing, upsetting, or even scary. But the good news is, with the right support and understanding, we can help them get through it and become stronger.

Why Change Feels So Big

Change usually means something familiar is gone, like a person, place, routine, or something that feels comforting. For example, studies show that neurodivergent students often feel more anxious when school changes because they lose the structure they’re used to and face new sensory challenges.

It’s not about being stubborn. Their brains react strongly to things they can’t predict. That’s why our job isn’t to force them to “just deal with it,” but to help them adjust with patience and support.

Tools like visual schedules, clear routines, and quiet, calm spaces can really help. Even something simple like a calendar showing what’s coming next can make a big difference and help them feel more in control.

Tips that Can Help Kids (and Adults) cope and effectively process change 

  1. Talk About It Early

If you know a change is coming, help the child get ready. You can use simple stories, countdowns, or pictures to explain what’s going to happen. 

Example: “This is the last year that Camp Lee Mar is open”. Next summer, we’ll try a new camp. We can find it together.”

Research shows that talking about change early and using visual aids can make transitions easier and less stressful for kids with neurodivergent brains.

Change often means loss of structure, known people or environments, and sensory or social comfort. For neurodivergent children, transitions are often accompanied by elevated anxiety or distress: for instance, studies of school transitions show increased stress for autistic children adjusting to a new environment. What helps is understanding that this is not just “being upset” but a neurological and emotional response to diminished control and greater uncertainty.
Visual supports, predictable scaffolding and sensory‐aware practices help buffer these reactions. For example, using visual schedules or “what happens next” tools have been shown to support changes in routine for autistic children.

Practical Strategies for Coping

Here are recommended strategies for children and caregivers facing change or loss:

  1. Preview and prepare: If you know a change is coming (camp closing, new schedule, team moving), use social stories, visual schedules or timers to walk the child through what will happen and when. For example: “Camp Lee Mar is closed, but we can work together to find an amazing place for you next summer.”  This increases predictability and reduces the “surprise” factor. 
  2. Normalize the feelings of loss: Even if the change seems minor (favorite dessert discontinued), validate that it feels meaningful. “I know you’re sad the dessert is gone — it was special for you.” Acknowledging the emotion gives the child permission to feel rather than push it aside.
  3. Provide routine and structure during the transition: Even when the external environment changes, maintaining internal structure (same dinner time, check-in routine, sensory breaks) helps anchor the child. Research suggests that neurodivergent children benefit from environments characterized by structure and predictability. 
  4. Offer sensory down-time and calming tools: Change often involves sensory and emotional over-load. Ensure quiet spaces, fidget tools, headphones or other sensory supports are available. As noted above neurodiverse children may need additional scaffolding for emotional and self-regulation. 
  5. Encourage active coping and involvement: Let the child have some choice or control in how the transition happens. For instance, if their camp closes, help them identify one positive thing they’ll carry forward (a friend, a skill) and involve them in the process of selecting a new appropriate camp for them. That sense of agency supports resilience. Research on resilience in neurodivergent populations highlights the benefit of focusing on strengths, social supports and adaptive coping. 
  6. Maintain connections and social support: Peer or staff/family connection is crucial. Help the child schedule a meeting with a friend from camp, or create a “memory scrapbook” of the team and share it. Social support is strongly linked to better coping in change contexts.
  7. Reflect and adapt afterwards: Once the change has taken place, revisit with the child: “How do you feel now? What helped? What was hard?” This reflective process strengthens their ability to cope with future change and builds self-regulation skills.

Connection-based Strategies Grounded in Research

  • Use visuals and scheduled check-ins: For example, at Camp Sequoia we have daily check-in’s with each kid in addition to visual support to improve comprehension of change for our kids, especially during transition times (the first few days of camp). 
  • Foster strength-based conversations: Rather than focusing only on what was lost, ask, “What did you enjoy the most? What from this experience do you want to keep doing?” Research emphasizes leveraging neurodivergent strengths in interventions (e.g., in reasoning, expertise, character) to promote well-being.
  • Create bridging rituals: For example, if a favorite team moves, hold a “memory game day” honoring past games, then plan a new ritual of supporting a new team or a related sport. The bridging ritual helps the child process loss and transition to something new.
  • Use frequent, short conversations about the change rather than a one-time talk. Because neurodivergent children may need repeated processing, checking in regularly helps them integrate emotions and adjust.
  • Support social connectedness: Facilitating interaction with peers who have had similar experiences (change/loss) can normalize feelings and reduce isolation. Connections with understanding peers buffer against distress.

Final Thoughts

When a neurodivergent child faces change or loss—whether big (camp closing) or seemingly small (desert gone)—the key is deliberate, structured support: predictability, emotional validation, sensory scaffolding, social connection and strength-based reflection. These strategies don’t just help them “get through” the change—they build resilience for future transitions, and reinforce the core message: “You are supported, you have choices, your brain works differently and that is a strength.”

By staying anchored in connection and research-informed practice, our caregivers and educators can transform change from a threat into an opportunity for appropriate healing and growth. At Camp Sequoia, we build an intentional community designed to give our campers the opportunity to become the best versions of themselves whatever change has brought them to the Camp Sequoia family.